Pardon my silly title. I was just remembering back when I told you all I’d call it good as long as I could still wipe my own butt. I still can. And then some.
Thank you for checking on me, and for your continuing prayers. I thought it was time to just check in and say I’m OK. I’m no worse, certainly. And I think (dare I say it?) I’m a bit better. My legs, although they still feel crazy, they work quite well. No falling down for a while, now. My arms remain the same — twitchy, weak, crampy, and my throat/tongue remain . . . maybe not quite the same. A little bit better. The new symptom that has emerged over the past month is tinnitus: ringing in my ears. Actually, it sounds like that high-pitched, TV test pattern tone. Remember that? I have it all the time. Some times are louder than others. I really miss silence. I like silence. It was my good friend, sometimes. I’m told once one has tinnitus, it usually stays for life. I’m not thinking too much about that. As I’ve said before, I don’t seem to do any disorder in typical fashion, so why should I expect to do that one typically?
I am not seeing any doctors now. I’ve had enough. I won’t be stubborn or unreasonable; if I hear of someone who sounds like just the right one, I’ll try to get an appointment. But the relentless, full-time pursuit of the doc who will understand and explain all this . . . not doing that any more. When my arms are happier, I have a bit more to say on why that is so. But for now, just know that it is.
With the energy I can muster, and the cooperation I can coax from my various parts, I am now trying to attend to the things over which I have some control — my intellectual and spiritual life, my relationships, long-neglected home stuff, getting my health (aside from WTF) in as good a condition as I can. Blogging still has to be on hold. However, I recently started posting on Twitter.com (much more frequently than I expected I would!), so come and see me, and sign up. I recently told someone I think Twitter has become the methadone for my blogging addiction.
Be well. I still think I’ll be back here. Just don’t know when. Bless your hearts, and I truly mean that.
Yay! I was so excited to see a post from you, and relieved when there was no horrible news to go along with it. I’m so glad things are going ok for you. I sure think about you a lot and will continue to say lots of prayers for you and your family. You made my day.
I can’t help but wonder if your giving up the relentless pursuit has helped your peace of mind, and therefore is having a positive effect on how you feel physically. Whatever the reason, I’m SO GLAD you’re feeling better and not falling down. Trust me–I know what it’s like to fall down!
If Twitter is a drug, does that make you a pusher?
Though you haven’t heard much from me, you’re always in my prayers.
*still says metal poisoning*
Thank you for checking in so we can know how things are for you. Be gentle with yourself and know there are people praying for you.
Susie…..thank you for my email, I feel much better knowing that you are all right….I will check out twitter….God Bless U, judy
I haven’t known what to say, but I kept checking back here. You sound good, Susie. Please know that I care about you very much. {{{{{{{{Susie}}}}}}}}
So glad to hear you are okay. I check in often but rarely comment but I do think of you very often and pray. I don’t know how to do twitter but I’ll see if I can find out. Bless you Susie. DonnaJo
So glad to hear from you! And big YAY for any progress.
Now to the other thing: Dang it, Susie. I’ve avoided Twitter so far, but I might just have to start if you’re posting there. Argh.
How nice to see you!!!!
Hallelujah for the news! (I don’t say hallelujah very often, but the occasion is fitting) YOU WILL get better. I’m convinced!
Twitter? Tomorrow, I shall endeavor to join. Because anywhere you are is somewhere worth me being. I do miss you!!
So glad to know there is slight improvement in what you experience daily with your illness! My love to Jif, LG and the VBD, please. And my love (along with some banana bread, or maybe a brownie) to you.
Hallelujah!!!! Hiya Susie girl! What a sweet surprise to see you here tonight! I check almost daily, let me tell ya! I love you dear girl and your tweets have been cracking me up!
Keeping you in my thoughts and prayers.
Oh!Oh!Oh! HI!!!! HELLO SUSIEKINS!!!
*waving like a lunatic at you!*
I’m glad you’re doing well, darlin. It’s good to hear from you. I think about you every day.
Hooray, Susie posted!!!
You just made my day!
I had just checked in the morning on Friday to see if there was news from you – guess I was too early…
I am so happy that you are doing as well as you are, and in fact having lessened symptoms. I know it is FRUSTRATING but you sound like you are taking it in stride, per usual.
Now I have to go see if I can find out how to twitter….
Thinking about you, dear, and glad you put pen to screen and dropped us a line. I need to check out Twitter…
*sending much loves*
Hi, Susie!
xxx
Susie, you remain in my thoughts and daily prayers.
Good to hear from you! I am so signing up for Twitter now. I just heard about it recently (like, in the last couple of days) and I thought, “I honestly don’t know how I would use a thing like that.” Heh. The Lord provides. Thanks, Susie.
happy sunday, susie. (How nice to be able to come over here and say that.)
I’ve enjoyed Twittering with you. Does that sound slightly naughty??? Love you.
I’m with Squirl, Twittering with you is the highlight of my day!
YAY!!!!! Great to see you post Susie, take care; thinking of you.
Good to hear from you, Take care of you.
Love the new look! I didn’t know you had a lake named after you. You’re even more awesome than I thought!
ya know, they say it’s the simple things in life that bring us joy: wiping now has greater meaning
hang in there chica!
Bless your heart, too, my friend. How wonderful to hear from you, and too hear that (some) things are (somewhat) better. You are constantly in my thoughts and prayers, even when I don’t stop by for a while.
Love. Hugs. Prayers.
This is great – a post from Susie! Glad to hear from you, Miss Susie!! Sorry everything isn’t better, but glad that at leasst some things are. Of course, now I have to go get twitterpated…..
(Couldn’t resist!)
Have a good day, Susie!
*reaching up to comment #27 to remove the superfluous “o” from “to”*
When I saw Nilbo on Twitter, I went over and had a looksee.
There is just no way my brain works thataway, all those quick comebacks.
And now I see you beckoning.
Not only would my mind get all frazzled trying to catch up, but my backside would widen out from all the extra time I’d be sitting in this chair.
I’m glad to see you putting up a regular ol’ blog post.
I love your new masthead!
Glad to see you’re doing pretty well– at least not worse!
Merry Spring to you– hope you can take time to enjoy it.
I’m breathing fresh (pollen-filled) air, sneezing, and still praying for you.
Kim
I’m so glad you’re still wiping.
my heart runneth over with gladness. truly.
so happy you are doing okay and even a little better, take care of yourself. as you can see, we ain’t go anywhere!
the twitter thing confuses me…i just can’t seem to “get” it. don’t know why. but if i ever needed a reason to give it another chance, you’re it! so, don’t be surprised if i pop up on there!
i not only speak bad english, i can’t even type it.
*we ain’t GOING anywhere!*
sigh.
It’s not the same without you here, but twittering is a happy way to know you are alive and…wiping.
Since seeing your post I can’t wipe this smile off my face! I was afraid you had wiped the slate clean and we’d never hear from you again… I’m glad to hear you are wiping, but not the slate! (Jumping up and down clapping and whooping out loud!) Good to see you!
xxx
So, so glad for this update.
Susie – I hope you check in here from time to time. I looked at Twitter and it wasn’t for me, but still want to know that you are wiping, kicking, laughing, enjoying!
Good morning Susie, I’m at my desk having a coffee and thought I’d pop by and say hello. Take care hon, hope you’re enjoying some spring sunshine & fresh air.
Hey there, it’s me saying “Hi, Susie!”
Also, I’m intrigued that a good portion of the avatars are all geometric all of a sudden. Maybe it’s just me who’s seeing that, eh?
Lovely new masthead!
I’ve noticed that WordPress blogs seem to have the quilt pattern avatars for those of us who don’t bother with one personalized.
I think they look nicer than the old blue and white.
I probably won’t be around much this weekend, so I’ll say Happy Mother’s Day a couple days early.
Glad to see a newish post!
Have a Happy Mother’s Day tomorrow!!!
Happy Mother’s Day!
Hey Susie, just stopping by to say hello. Hope you had a good day.
just a hello…hoping you are doing better every day…and know you are being thought about and prayed for.
Happy May!